Her immunologist had called in a script for her pain and told us to stop her immunosuppressant medication to give the ulcers a chance to heal and he also suggested we contact her GI doctor since there could be a possibility that there are ulcers in her throat and stomach, causing the vomiting.
Her pediatrician, at our late morning appointment, gave us the suggestion of breaking apart ice cubes and placing a small piece at a time on the inside of her cheek to let it absorb. She likened this idea to an IV drip, a slow way of easing the stomach into accepting fluids, and if it was tolerated we could slowly start adding sips of drinks, ice pops etc.
She was still in a lot of pain, and very tired. She had been sleeping off and on all afternoon. When she was awake, she would snuggle on the couch and color with her sisters, willingly letting ice chips melt in her mouth. But by dinner time, we had only gotten an equivalent of 3 ice cubes into Phoebe and she had become very lethargic and hard to awaken. I took her straight to the ER.
When we got to the ER, she was still very sleepy, her heart rate was high and her glucose was low. They immediately started an IV to hydrate her and because they didn't want to take any chances sending her home they started the process of admitting her.
The staff in the ER and on the floor were in constant communication with her Immunologist (her main doc) so they could give her the best care they can given her extensive rare history. Orders were put in for fluids to help raise her sugars, medicine to help with her pain, medicine to help with her stomach acid (the medicine also coats any ulcers that could be present in her stomach as well) and a rinse to help coat her ulcers in her mouth.