When this week started she was only experiencing her "normal". But her normal takes it's toll on her, even without the added strain of an infection. Phoebe's normal includes swelling, fevers, fatigue, shortness of breath, muscle weakness, aches and pains...among other things. But sending her to back to school after coming off of being how sick she was, we were expecting her to be more tired and experience more flare ups.
And we were right. Come Thursday afternoon, Phoebe was completely exhausted and her flare up was in full swing. Even though she is on an abbreviated schedule regularly at school (three and half hours of school a day), and she had only been back for two days, her body was worn out, swollen and sore.
But true to the fighter she is, Phoebe insisted on going in to school today. She has missed her class, her teacher, and being able to go to school like her sisters that she wasn't going to let anything stop her. She did come home today and curl up in her pajama's underneath "white", her blanket she clings to when she isn't feel well.
Since it is now the weekend, she has a couple of days to rest and recover from her few days back at school. Hopefully her symptoms remain as her flare ups, and don't progress into anything more.