Phoebe’s health limits us in the plans we make and the plans we keep. Too many times we have made plans and at the last minute had to cancel or leave early because her health couldn’t handle the experience. It is not easy as a parent to see the disappointment on any of the girls faces when we aren’t able to do something or experience something fully. And while we do our best to still allow the other girls to experience as much as they can, it is a delicate balance that is seemingly impossible to walk. On one hand you don’t want Phoebe to feel left out because she isn’t able to go or has to leave early, while on the other hand you don’t want the other girls to feel they are missing out because they can’t go or have to leave early because Phoebe isn’t feeling well.
All we can do is hope...hope that if we make plans we are able to keep them...hope that we can keep the delicate balance of all the girls being able to experience and do as much as possible...hope that people will understand if we have to cancel last minute or leave early...hope that Phoebe can do more than she did last year