Happy 9th Birthday to my rare gem! Phoebe, for someone so young you have the most unwavering courage and strength I have ever seen! You greet each day with wonder and amazement in your eyes. Always seeing the magic and possibilities that exist. That is such a special gift, my sweet girl. One I hope you never lose. I look at how you go through all that you do and you inspire me! You are teaching so many people along your journey and giving a voice to rare diseases everywhere! You are a champion, my little fighter! I am honored to be your mommy! I love you puddin!
The true author of this blog is my daughter Phoebe. This is her life. I am blessed beyond words to be her mommy and to be able to share her story with you.