Happy 8th birthday to my rare gem! Phoebe, you have the most unwavering courage and strength, especially for someone so young. Your spirit radiates in everything you do. Your ability to greet each day with wonder and amazement in your eyes is a gift, one I hope you never lose. I look at how you go through all that you do and you inspire me! You are teaching so many people along your journey and giving a voice to rare diseases everywhere! You are a champion, my little fighter! I am honored to be your mommy! I love you puddin!
The true author of this blog is my daughter Phoebe. This is her life. I am blessed beyond words to be her mommy and to be able to share her story with you.