People from our community and state came to The Ridge Restaurant for dinner and learned more about ALPS, and the ongoing issue of insurance denying necessary treatments and tests for people. We even had a state Assemblyman come!
My family and I were so truly blessed to meet such amazing people! We talked about Phoebe's journey and learned about other inspiring children's journeys. We found kindred spirits that night, that felt like we had known them forever!
From the very beginning, this was always much bigger than just Phoebe to us. The fact that this happens to many people who don't know what to do to fight back against the insurance companies and subsequently end up going without testing and treatment inspired me to fight for all of them. To give them all a voice.
We supplied everyone who came out with a briefing on ALPS and ways to Roar with Phoebe. We hope more people get involved in raising awareness about rare diseases and fight against the injustices of medical care. Together, we can make a difference!
Voice by voice, Phoebe's roar is getting louder!
Photo: Pasta for Phoebe poster