There is nothing more magical then sitting a room aglow with Christmas lights.
Thanksgiving weekend it is our tradition to decorate our Christmas Trees. Phoebe loves how a real pine tree smells (we all do). And now that we get two trees every year there is twice as much pine tree smell filling our home.
There is nothing more magical then sitting a room aglow with Christmas lights.
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As I reflect upon this past year, what I am most thankful for is these 6 kids. To have them all together, happy, safe, healthy, fills my mommy heart with such joy.
Society may call us a blended family, but to me not half, not step, not mine, not yours. We are simply, a family. The girls brothers may not biologically be related to me, but I love them like they are. Nothing could ever change that. So from my family to yours, Happy Thanksgiving! Phoebe's 1st Day of 4th Grade! With a twist!
Since we are still in a global pandemic, school is virtual this year for this fighter. She is still a student in our school district, receiving all the accommodations that she would have should she attend in person school, but all her classes will be held via Zoom. It was not an easy decision to make, especially since it had taken us so long to finally get all the accommodations Phoebe needs for school. But when we are facing a pandemic, caused by a virus that has killed so many people world wide, we knew we had to do whatever needed to be done to keep our fighter safe. She will miss seeing her friends at school everyday, and it will be harder without the hands on instruction from her teachers that she needs, but her Geeda and I are ready, willing and able to be the hands on teachers that she needs this year. Did I mention that Phoebe's three sisters will also be fully virtual this year for school? 4 students doing zoom calls during school hours, five days a week....let the countdown to the last day of school begin! With all the changes the pandemic brought to the world, the way doctor appointments were conducted was one of the hardest to adjust to. With Phoebe's multiple complex issues we rely on the in person visits and physical exams to help determine if we are on the right course. It also provides the doctors with the physical exam that is nonexistent with virtual visits.
Now that her routine doctor visits are resuming to in-person regularly we are reminded of how blessed we are to have the team of doctors and specialists that we do. As extra precautions for Phoebe, they bring her in the very beginning of the day so she is not exposed to a group of people or all the germs that might be in the waiting room after all the other patients have come and gone. Phoebe is fighter. We have known that. But the way she has adjusted to pandemic life, she has impressed so many people. She has embraced this new normal that a lot of us are still struggling with. For Phoebe though, this has been her reality for a lot longer then the rest of the world. We always have to be on our toes, taking extra precautions, distancing ourselves, wearing masks, frequent hand hygiene and sanitizing the house. For Phoebe, this is normal every day life. The world is just now experiencing what the immunocompromised experience daily. All Phoebe has wanted this year was to get her ears pierced. She waited patiently all summer so she wouldn't have to give up swimming in the pool. We all cried watching her reaction and seeing how happy she was! "I love them" was her happy, ear to ear smiling giddy response to seeing them in the mirror for the first time.
Disclaimer: the only time her mask cam off was for a video I took of her reaction, social distancing and mask wearing was adhered to by everyone else the entire time As more and more things open up with the pandemic seeming to be (slowly) getting under control, we were finally able to travel to Long Island for the girls to spend time with their older brother!
Too much has stood in the way of getting the kids together for so long. But finally we were reunited! What better way to spend some overdue quality family time together then by playing mini golf! A first for the girls! I got to take them to a drive-in movie! A local shopping center hosted the event which meant it was super close to home and we all got to pick what we wanted to eat from the various shops open!
The girls loved picking their own dinner and getting to watch Jurassic Park from the comfort of the of the car. It rained right before the movie started and we even got to see a rainbow! I must say, a lot has changed since the start of the pandemic, but we are really enjoying these fun new offerings towns are hosting to help boost local business and morale. |
AuthorThe true author of this blog is my daughter Phoebe. This is her life. I am blessed beyond words to be her mommy and to be able to share her story with you. Archives
June 2021
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