Spending Rare Disease Day in the Emergency Room. Phoebe's fever is still going over 103.5 and she is not drinking enough to sustain her. Thankful the nurse has worked with Phoebe before and the doctor isn't " thinking horses". As a rare disease patient, it's professionals like these that make all the difference.
The true author of this blog is my daughter Phoebe. This is her life. I am blessed beyond words to be her mommy and to be able to share her story with you.