Her pulmonologist doesn't want to wait anymore. With all the lung and breathing problems she has been having this year, her snoring getting worse, how hard it is to wake her in the mornings from sleeping so restlessly, and how easily she tires out during the day, he's ordered a sleep study.
I was not aware of how many wires and what all was exactly involved in a sleep study. But even though I was a little nervous watching them hook everything up, Phoebe remained calm and still through the whole process. She didn't flinch or resist at all. And once everything was all hooked up and secured where it needed to be, she laid down, held my hand and fell asleep.
Phoebe slept through the whole night and was eager to go home when we woke up this morning. All she wanted to do was wash the paste out of her hair (they attached the probes to her head) and go to school. Her strength, bravery and determination continue to amaze me!
Now we wait and prepare.
Wait...wait for the results from the sleep study, praying they give us some insight or ways to help Phoebe get the rest and sleep she needs. We are so used to hearing "I don't know", "all we can do is treat the symptoms" and "let's watch and wait", that any help or information, no matter how small, would be a relief.
Prepare... prepare for the fight with insurance. We were switched to a new plan with a new company the beginning of April and it has been horrible! All the other fights we have had with insurance companies to cover services for Phoebe were nothing compared to what we face now. This new company will not cover anything until the deductible is 100% met, and once it is they only cover a percentage of the cost. What's worse, most of what Phoebe regularly goes through isn't covered and if it is, our cost is at least 4 times what it used to be. And that is just for what she has had done in the first month of this new insurance.