This was her first time ever fishing! She was so proud to have her own rod and to reel the line in all by herself!!
Next time she is determined to catch a fish!
Phoebe has been asking to go fishing since the beginning of June, so for Father's Day we took her and her sister's!
This was her first time ever fishing! She was so proud to have her own rod and to reel the line in all by herself!! Next time she is determined to catch a fish!
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Phoebe has been having a rough time so far this summer. Her body does not handle intense temperature changes very well, so with the high humidity and heat she has been swelling a lot more, experiencing more pain and discomfort and wanting to just lounge on the couch under her blanket.
Her blanket...the one thing she always asks for when she isn't feeling well. The one thing, that as soon as you see it with her, your heart drops cause you don't know how the rest of the day is going to turn out for her. We have received a bill for the "snipet" genetic test that was done in December on Phoebe. Insurance had initially claimed they would fully cover this test, but according to the bill we received from the lab, insurance changed their minds.
The insurance company has all of Phoebe's medical history, doctor's notes, tests and letters of necessity, but have still decided that the majority of this bill is not covered by insurance. Since insurance denied having a full genetic workup done, there was a different genetic test Phoebe's geneticist wanted to try to have done. In this test they could pick 100 genes to have tested and mapped and hopefully one of the chosen genes would give us answers to what is going on with Phoebe.
As of today, we have still not heard whether or not insurance will cover this test. With the way insurance has been, there is little hope of being able to get this necessary testing approved and covered. |
AuthorThe true author of this blog is my daughter Phoebe. This is her life. I am blessed beyond words to be her mommy and to be able to share her story with you. Archives
June 2021
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