On the 8th day of #RareChristmas Phoebe wants you to know...families affected by rare disease have the same hopes for the new year each and every year. Hope for treatments. Hope for diagnoses. Hope for answers. Hope for cures. Hope for more research. Hope for more identification and naming of diseases. Hope for more awareness. Hope that this year sees more laughter and fun than doctors and hospitals. Hope that limitations can be lessened and experiences can be gained. No matter what this year will bring, we will continue to fight for all of these things. By never giving up the fight, we hope on New Years Day we won't just be hoping, instead we will be celebrating that they happened! #12DaysofRareChristmas
The true author of this blog is my daughter Phoebe. This is her life. I am blessed beyond words to be her mommy and to be able to share her story with you.