Today is Rare Disease Day. A day to raise your voice for the rare and undiagnosed community. A day to bring awareness to these incredibly brave, resilient, amazing patients who face "I don't knows" from their doctors. Today is a day for them to show their stripes. And for us to join them in showing that alone they may be rare, but together....we are strong!
The true author of this blog is my daughter Phoebe. This is her life. I am blessed beyond words to be her mommy and to be able to share her story with you.