We have a lot of appointments that we are going to need to make for our sweet little girl...
Phoebe's neck has quite a few large masses protruding and there is no way to tell if they are individual masses or multiple ones fused together (like last time) until we get in to her specialists and have an ultrasound.
What makes this more frustrating is that insurance has officially denied the whole genome testing that we have been waiting to have run since November. We have exhausted all of our appeals and they are not budging.
The true author of this blog is my daughter Phoebe. This is her life. I am blessed beyond words to be her mommy and to be able to share her story with you.