It comes on so quickly for Phoebe. It took less than an hour for her energy to fade to pure exhaustion this evening. We could tell from the minute she got home from school something was off. That she wasn't feeling like herself. That something was brewing inside. With a fever no lower than 100.6 with medication and respiratory symptoms we know all too well beginning, we are on her round the clock treatment regiment. Praying this doesn't get much worse for her!
Happy 8th birthday to my rare gem! Phoebe, you have the most unwavering courage and strength, especially for someone so young. Your spirit radiates in everything you do. Your ability to greet each day with wonder and amazement in your eyes is a gift, one I hope you never lose. I look at how you go through all that you do and you inspire me! You are teaching so many people along your journey and giving a voice to rare diseases everywhere! You are a champion, my little fighter! I am honored to be your mommy! I love you puddin!
Phoebe got to celebrate her upcoming 8th birthday with some of her friends from school!
Phoebe is not always able to attend school and when she can go to school she cannot do everything her class does. Last year she felt very left out. It was very hard for her to watch her classmates run off and play without her, especially when she would try to participate as much as she could. It honestly broke her heart (and mine when I witnessed it at an end of the year party) and Phoebe didn't want to go back to school at all.
But this year has been different! She has made some amazing friends who go out of their way to include her. These friends will even choose to sit with Phoebe when she cannot participate in the activities.
This birthday party was extra special because Phoebe got to celebrate with some of these friends from school!
The true author of this blog is my daughter Phoebe. This is her life. I am blessed beyond words to be her mommy and to be able to share her story with you.