On the 5th day of #RareChristmas Phoebe wants you to know...the disease is always there. Some days are good, they're filled with laughter, joy, smiles, and playing around. Some days are bad, they're filled with tears, sadness, pain and being curled up in a blanket. But no matter the day, good or bad, the disease is always there, and it's presence is always known. The symptoms never go away, they just lessen or intensify, with no rhyme or reason to why they do. So you make the most of the good days, because you never know when they will change. And you fight through the bad days, hoping they don't last too long. #12DaysofRareChristmas
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