But here we are, a few days into the New Year, and Phoebe's flare up has gone from manageable to overwhelming. She is curled into that blanket (her white one that she clings to when she is not feeling well), and carrying around her trusty puppy dog that has seen her through every doctor appointment, ER visit, surgery and hospital admission.
After seeing her specialists we have tweaked her treatment regiment to support her while she fights to get back to her normal. While we take extra special care of our little fighter she is indulging in movie marathons of her choice (Ghostbusters is her current favorite), and drawing pictures for the family when she has the strength.